For Review Only P11C01 Health needs assessment Journal: Oxford Textbook of Global Public Health Entry ID Draft Manuscript Type: Chapter Date Submitted by the Author: n/a Complete List of Authors: Kelly, Mike; University of Cambridge Department of Public Health and Primary Care, Primary Care Unit Powell, Jane; Univerity of the West of England, Centre for Public Health and Wellbeing Bartle, Natalie; Private onsultant Keyword: healthealth needs assessment, health economics, utilitarianism, capabilities theory, health inequalities, social justice Oxford Textbook of Global Public Health For Review Only 1 Health Needs Assessment Michael P. Kelly, Jane E. Powell, Natalie Bartle Page 1 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 2 Introduction The idea of health needs assessment is, on the face of it, straightforward - estimate the health needs of a population or sub group in a population and organize services accordingly. The English National Institute for Health and Care Excellence (NICE) defines Heath Needs Assessment as “a systematic process used by NHS organizations and local authorities to assess the health problems facing a population. This includes determining whether certain groups appear more prone to illness than others and pinpointing any inequalities in terms of service provision. It results in an agreed list of priorities to improve healthcare in a particular area” (NICE, nd). In the United Kingdom health needs assessment has been used in a wide variety of settings. These have included Immigration Removal Centres (NHS England 2015), local NHS Organizations (NHS Kent and Medway, 2013); and by Local Authorities (Horsley and Hollingsworth, 2014; Derby City Public Health – Knowledge, Intelligence and Strategic Planning Council 2017). In an uncomplicated world the assessment of health need and health-care need should be a tool for tackling inequalities, a pre-requisite for the allocation of resources and the first step in planning and evaluating care (Stevens and Raftery, 1997). In practice however, measuring health needs is not straightforward. It raises difficult questions about health-care, equity, equality, fairness and justice (Gillam, Yates et al 2012). Needs assessment embraces a variety of methods and techniques to gather information about populations (Health Development Agency, 2003). In the UK traditionally it has meant taking ‘a population-based, epidemiological and public health approach to the planning of health interventions’. That means using data about population patterns of health to do rational planning in order to meet the particular needs of all, or parts, of the community, taking account of equity, efficiency and affordability. In principle, this approach to needs assessment might be used as the basis for planning in any health system (Clarke. Powell et al 2009). It aspires to ‘maximize the appropriate delivery of effective health Page 2 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 3 interventions or care …in an evidence based way … [to] maximize equity’ (Powell, 2006). Globally however, the term health needs assessment is more widely used and deployed to mean a range of different things. Sometimes the approach is highly specific focusing on particular risks or specific diseases (Allchorne and Green 2016; Cicero, Rosticci et al 2014; Nacul, Stewart et al 2014; Cox, Sherrill- Mittleman et al 2013). Sometimes it is aimed at special sub-groups and populations (Vyas, Chaudhary et al 2013; Ash and Mackereth, 2013) or for specific services (Ingold and Hicks, 2015), and particular populations at particular points in the life course (Pretty, 2014). In the United States its currency includes linkages to charity hospitals and the needs of disadvantaged groups who might be eligible to use the hospital facilities or to determine what sorts of services ought to be provided (Apatu, Hamadi et al, 2018; Van Gelderen, Stacey et al 2018). The US 2010 Patient Protection and Affordable Care Act created a new legal requirement for non-profit hospitals to conduct Community Health Needs Assessments (CHNA) every three years to maintain not-for-profit status with the Internal Revenue Service (Fischer, Schwimmer et al 2018; Rosenbaum, 2013) and various techniques have been used to do this (Stone, Sierocki et al 2018; Franz, Skinner et al, 2017; Mathews, Coyle et al 2015; Pennel, McLeroy et al 2015). Practice varies widely (Becker, 2015; Alfano-Sobsey, Ledford et al 2014). The website of the US Centers for Disease Control and Prevention (CDC) defines Community Health Assessment as a systematic examination of the health status indicators for a given population that is used to identify key problems and assets in a community. The ultimate goal of this kind of community health assessment is to develop strategies to address the community’s health needs and identified issues. A variety of tools and processes may be used according to CDC to conduct a community health assessment; the essential ingredients of which are community engagement and collaborative participation. https://www.cdc.gov/stltpublichealth/cha/plan.html Health needs assessment Page 3 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 4 has also been used in the US in Medicaid enrolment (Leininger, Friedsam et al et al 2014). In disaster zones the term denotes ways of getting emergency provision to the population in the most acute of circumstances (Hong, Song et al, 2017; Malilay, Heumann et al 2014) or assessing need after disaster has struck (Subaiya, Moussavi, et al 2014). There is no single method or methodology applied, and the term health needs assessment or just needs assessment has come to refer to any way of making an assessment of need. The UK population-based, epidemiological approach to health needs assessment. We begin by focusing on the approach to needs assessment which originally drew heavily on epidemiology and health economics. In this view assessment of need must include an assessment of the effectiveness of interventions to meet identified health needs (Mooney, 1992). The assumption is that the relative total need can be measured sufficiently by just a few factors such as mortality or morbidity rates. It emphasises quantification and objective comparative measurement. This type of needs assessment is usually dependent on existing or available data, it seldom involves generating new information from primary research because this would be too expensive and take too long. Health needs assessment tends therefore to be based pragmatically on the routine data sources that are there already (Clarke, Powell et al 2009). There are a number of distinct steps. It begins with clear problem definition. To do this, two questions need to be considered. What do we want to find out about the population, and how can we go about finding it out? A series of further questions can then be asked to help clarify the process: why is this assessment needed now, who will be affected, what would the consequences be of doing nothing, how much time is available, how can the results and the recommendations be presented to maximal effect, are sufficient resources Page 4 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 5 available, and how will the needs assessment be itself assessed and evaluated? (Clarke, Powell et al 2009). A detailed project plan identifying the component parts of the exercise should be prepared. Central to the exercise will be an epidemiological assessment, which will determine how many people in the population need care and at what level and what services are available for them. It is important to identify the denominator population, that is the total population or relevant sub- population because otherwise it is very difficult to interpret prevalence (total number of cases) and incidence (new cases in a given time period) (Clarke. Powell et al 2009). Collecting data like this tends to be more straightforward in developed countries. In less developed countries data systems tend not to be so reliable, although where data systems are less than optimal other options may be available (Bonnefoy, Morgan et al 2007). Details of the structure of the population need to be built into needs assessment; the age, ethnic, occupational and geographical contours of the local population and the patterns of health inequalities will be assessed and described (Kelly, 2010a). The level and severity of the diseases of interest need to be examined at this stage too, along with an assessment of the prevalence of relevant risks - for example levels of smoking, physical activity and alcohol consumption. In a population with a significant number of Afro Caribbean people an assessment of sickle cell disease might be a particular focus of interest, in a mining community chest disease might command attention. The absolute number of people suffering from the condition, and the degree of severity can then be calculated (Clarke, Powell et al 2009). If assumptions have to be made in the absence of data and proxy variables are used, these must be made explicit. The next stage is sometimes to develop an assessment of the clinical effectiveness of interventions for the condition or conditions of interest. There are a variety of ways of assessing effectiveness. However, if we are concerned to Page 5 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 6 determine the clinical effectiveness of a medicine, or some other kind of intervention, we will get a more accurate assessment if we use evidence in which a control is used and potential biases are minimized. If this is so, we can be reasonably sure that the observed size of the effect is a consequence of the intervention not some other biasing factor. Some commentators suggest that using only evidence drawn from the top of the evidence hierarchy to assess clinical effectiveness is the way to do this (Clarke, Powell et al 2009). The evidence hierarchy is a device which categorizes studies according to the methods they have used and the degree of bias which is associated with the methods. Randomized controlled trials (RCTs) and the meta analyses of such trials rest at the top of the hierarchy as these methods are deliberately designed to reduce bias and offer the greatest certainty that the observed relationship between the independent and the dependent variable is the consequence of that relationship, not some other factor. It is possible to make an assessment of the effectiveness of interventions by examining clinical trial data for its quality or bias. So it would be quite appropriate, but very time consuming, for someone conducting a needs assessment, who is interested in the effectiveness of particular treatments, to examine RCT findings directly. An easier route is to use the evidence of effectiveness which has already been appraised for its quality in for example Cochrane reviews. These are produced by Cochrane (formerly the Cochrane Collaboration), a world-wide network of reviewers conducting quality appraisal of primary intervention studies. Alternatively, data examined by the National Institute for Health and Care Excellence (NICE) who conduct clinical and cost effectiveness analyses of new technologies, treatment pathways and preventive interventions in England can also be consulted. The assessment of effectiveness is based on a set of principles which collectively are known as Health Technology Assessment (Kelly and Moore, 2012). Page 6 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 7 After the effectiveness analysis is complete a synthesis of the evidence is then undertaken of the epidemiology in the local population, incidence and prevalence, underlying risk factors, treatments and interventions ranked according to effectiveness, along with evidence of cost effectiveness and actual costs. These will, of necessity, be imprecise, but if assumptions are made explicit they will suffice as a starting point for needs assessment (Clarke, Powell et al 2009). Once data have been collected on the local population of interest, the next stage is to compare locally derived data with data from other places in a comparative needs assessment. This allows an appraisal of the degree to which local provision is consistent with what might be expected on the basis of the comparisons. This is sometimes difficult because rates of interventions vary both within and between countries, but the process is about putative differences between the observed and the expected values rather than exactness. It is important to consult with stakeholders at this point and genuine community participation is important. Rapid needs assessment may come into play where statistical and other data are unavailable (Clarke, Powell et al 2009). All of this is brought together in a “case for change “document” which will outline what is in place, what ought to be done, what stakeholders believe should be done and what the community want done. Costed options are essential to inform redistribution of resources. The final step is to act on the needs assessment and implement a plan. Health systems are complex socio-technical arrangements consisting of people, cultures and practices, organizational structures, equipment and technologies. Health systems are constrained, because whatever the system, the resources to fund them are finite. Because of finite resources it is not possible to do everything, to fulfill every need or to adopt every new drug, procedure or device. At the same time demand for health services rises because expectations of what medicine can achieve increase. People, especially in advanced societies, Page 7 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 8 frequently think that they deserve or have some entitlement to – that they need - the best and most up to date medicines and procedures. The availability of a medicine therefore often creates the demand and the need for it – patients want it and doctors want to use it. All of this adds to the demands on the resources in the system. Health systems have to adapt to constantly evolving inputs in the form of new medicines, medical technologies and approaches to medical and surgical interventions. Decisions have to be made about the adoption and use of these new things. In addition, the health needs of populations are complex and change. For example, the age and ethnicity distributions of populations alter. Not only do populations change, but health systems themselves also evolve. Needs assessment, is one means of deciding how to allocate scarce resources to prioritise and tackle need in the face of these complexities. A needs assessment provides a basis for decision making, which will include local knowledge and understanding of the nature of communities, their socio-demographics and physical environment. Health needs assessment consists of a range of techniques to assess and meet need in a rational and systematic way against this background of complex and changing systems, population diversity, evolution and increasing expectations and demand. An understanding of the social environment and the social relationships within those environments is essential to successful implementation of needs assessment. Later in this chapter we explore some of the difficulties attached to this approach. However, it is very important to remember that applying rational principles in this way arose from an understanding that the operation of an unmanaged system in which historical patterns of supply, the generosity of benefactors, the preference of medical practitioners to live in attractive areas, and their wish to provide services that were consistent with their interests led to very unequal and inefficient distribution of resources. So whatever the imperfections of the Page 8 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 9 approach just described, it was born out of a desire to do things better and more fairly. Other techniques for doing needs assessment. Other techniques may be and have been used to assess need. It has been recommended in the US in the context of the Affordable Care Act that community health assessments use such principles as: multisector collaborations that support shared ownership of all phases of community health improvement, including assessment, planning, investment, implementation, and evaluation; proactive, broad, and diverse community engagement to improve results; a definition of community that encompasses both a significant enough area to allow for population-wide interventions and measurable results, and includes a targeted focus to address disparities among subpopulations; maximum transparency to improve community engagement and accountability; the use of evidence-based interventions and encouragement of innovative practices with thorough evaluation to inform a continuous improvement process; and, use of the highest quality data pooled from, and shared among, diverse public and private sources (Rosenbaum, 2013). A very wide range of methods have been pressed into service in the US. Becker notes that “Research designs vary across states and agencies, and little is known about the reliability or representativeness of results.” (Becker 2015:15). Telephone and door to door surveys have been used to ascertain people’s self- reported health needs (Stone, Sierocki et al 2018). Routine data and records (Franz, Skinner et al 2017; Alfano-Sobsey, Ledford et al 2014), community health partnerships and community surveys (Mathews, Coyle et al 2015), key informant interviews, focus groups, mixed methods designs (Becker, 2015:15) and opinion surveys (Alfano-Sobsey, Ledford et al 2014) have all been used. Community participation and community engagement are particularly emphasised “community participation and mobilization in CHA processes Page 9 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 10 includes the following: recognizing the community as a unit of identity; building on strengths and resources; facilitating collaborative partnerships; emphasizing locally relevant problems and an ecological perspective; promoting power sharing, co-learning, and capacity building; improving cultural sensitivity, reliability, and validity through quality community participation; increasing community trust and ownership; developing community systems through a cyclical and interactive process“ (Pennel, McLeroy et al 2015: 104). Pennel, McLeroy et al (2015) note that the following should be included “gathering and analysing quantitative and qualitative data; using data to identify health issues; using broad social determinants of health to identify influences on health issues, including environment, behaviour, socioeconomics, and culture; identifying resources and resource gaps; identifying health disparities; engaging and mobilizing the community; organizing and sharing findings; setting health priorities; developing an action plan to address health priorities; implementing action plans; and providing opportunities for continual feedback with community members” (Pennel, McLeroy et al 2015: 103). But they also note that this broad public health approach, may be at odds with the way that hospitals apply more biomedical principles. In England, Joint Strategic Needs Assessment (JSNA) develops analysis and strategy for current and future health and care needs of local populations to inform and guide the planning and commissioning of health, wellbeing and social care services within a local authority area. Health in All Policies (HiAP) aims to identify interactions between strategic targets, policies and strategies and population health and wellbeing (Public Health England and the Local Government Association, 2016) utilising “Health Lens” assessment (Kickbusch, Williams et al 2014). Health Lens Analysis has five essential elements that make the most of opportunities to implement ‘Health for All’ actions for potential population health impact and value. These are: - 1. To engage in order to innovate and establish and maintain strong collaborative relationships across sectors and disciplines. Page 10 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 11 2. To determine agreed policy focus among stakeholders to achieve take-up, reach and delivery of programmes and services. To gather evidence and data: to establish insight on population health need in the policy areas of focus. The use insights and inference drawn from big, digital routine data sources within JSNA., is increasingly common. 3. To generate policy recommendations and a jointly owned final strategy report. 4. To navigate to help steer recommendations through the decision making process. 5. To evaluate to determine the effectiveness of the health lens Health economics and needs assessment. Over the last several decades, two important techniques have come into general use to assist the allocation of resources in the face of scarcity in health systems; health technology assessment which helps to assess effectiveness of interventions and cost utility analysis in health economics, to help assess cost effectiveness (Kelly, Morgan et al 2010). We have already discussed health technology assessment above in the context of assessments of effectiveness. We now turn our attention to the contribution of health economics. As a starting point we look to Utilitarianism – which is the ethical basis of the discipline of economics. Utilitarian ideas, theories and techniques are concerned with the common good or the greatest happiness of the greatest number (Bentham, 1834). Utilitarianism in allocation of resources for the common good of society has much to commend it. But the tools and techniques do tend to favour the status quo. They do not challenge or on the whole try to amend existing resource allocations that might be considered to be unfair or unequal. Utilitarian tools and techniques if applied without critical reflection implicitly approve existing resource allocation and aim to improve social welfare starting from that point. They make what might be viewed as conservative changes to re-allocate Page 11 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 12 resources, so that at least one person is made better off and nobody else worse off (Pareto,1935). Utilitarianism, or the greatest utility of the greatest number, is the ethic that continues to guide economic thinking, tools and techniques and is also central to the ethic of health needs assessment. However, at the end of the nineteenth century, the future direction of economics as a discipline was influenced by the introduction into mainstream economic theories of mathematical thinking from the physical sciences and engineering. Economics moved away from broad questions of how resources should best be applied for the good of society - a mix of value judgement on social welfare and observation of facts, to empirical testing of hypotheses using data. For example, economists became very interested in the relationship between unemployment and inflation and used empirical testing of data to test hypotheses about these variables. A new more scientific language and a range of tools and techniques emerged from economic theories which tended to distance themselves from the messy details of complex human behaviour. The legacy of these changes still survives within economics. A quick perusal of the main economics journals today reveals numerous articles containing strings of equations to test hypotheses, as well as outlining the intricacies and new derivatives of different economic techniques and tools and how to apply them rigorously. In addition, the need within the economics discipline to find mathematical solutions to applied problems has guaranteed survival of the basic assumptions of the economic way of thinking i.e. people, firms and institutions are perfectly rational and behave predictably, as if, they have perfect information and control over environment and events. In economics, people are assumed to be equal and social/cultural and environmental/place variations between them are not acknowledged explicitly. So Page 12 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 13 when health needs assessment is viewed as rational, this is the underlying rationality. Health economics has developed particular techniques and tools, in particular the Quality Adjusted Life Year (QALY) (Cohen and Henderson, 1988). This technique is steeped in utilitarianism - allocating resources efficiently for the common good - in this instance fair allocation of health technologies and other interventions in the face of finite resources. Economic thinking is predicated on the notion that most resources are scarce and have limits, but demand on those resources is potentially infinite. This creates choice and opportunity cost meaning that once resources have been allocated and used, they cannot be reallocated and used again in another way (Powell, 2007). Health has been characterised as a multidimensional, dynamic concept subject to changing human expectations and revision over time (McGuire, Henderson et al 1988). The economics of health has therefore also developed over time to reflect these changes. Since the Second World War, successive generations of theorists have sought to embrace new ideas about health. For example, economic, social and psychological aspects of health have been included to reflect changing expectations, the nature of health systems, stage of economic development and passing time (World Health Organisation, 1947 1948; 1958). From the late 1980s in developed countries, definitions of health broadened considerably to reflect the notion that wellbeing is inseparable from and crucial to health, and in turn, both are influenced by society as a whole (Bowling, 2001). Cost utility analysis and the QALY have been widely used around the world in the assessment of the cost effectiveness of new drugs and of other types of clinical interventions. But it has proved less well suited to assessing preventive public health type interventions. The literature identifies a number of conceptual, methodological and practical difficulties in evaluating the effectiveness and cost- effectiveness of primary prevention interventions (Lorgelly, Lawson et al, 2010). Page 13 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 14 There are difficulties of producing evidence of cost-effectiveness for public health guidance and methodological difficulties associated with applying health economic techniques to public health interventions (Kelly, McDaid et al, 2005). These difficulties and issues spring from the focus on efficiency within economic evaluation techniques to the exclusion of the determinants of health and inequalities in health, which are central preoccupations in public health (Barendregt, 2006). This is important because as we will show, health needs assessment is itself premised on principles of economic efficiency as well as the principle of equity. And so the same problem that applies to the application of simple cost utility analyses to preventive interventions also applies more broadly to health needs assessment. Equity, efficiency and health economics Health systems may be characterised by the way they organise, finance and deliver resources to attempt to balance competing health and wellbeing objectives. Equity in the distribution of resources is the main objective of a health system where citizens have entitlement and equal access to the means of achieving good health and wellbeing according to health need. Efficiency in the allocation of resources- where the cost of good health and wellbeing is minimised and the benefits maximised- is often prioritised by governments over equity in order that the overall cost of a health system as a proportion of GDP, is controlled. Efficiency and equity are generally viewed as competing objectives that most health systems fail to reconcile because both objectives cannot be optimised at the same time – creating an equity-efficiency trade-off. This in turn raises concerns about social justice and generates philosophical arguments about where the balance between efficient resource allocation and equitable distribution of health resources to meet health need, should lie. Early forms of health needs assessment and similar approaches - social audit and rapid appraisal - attempted to establish the size of different health needs and to prioritise and allocate resources pro rata on that basis. Page 14 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 15 Health economic techniques and tools were directed at inefficiencies in the allocation of healthcare resources and ‘the need for healthcare’ defined as ‘capacity to benefit’ from healthcare became recognised as a key aspect of health status. As a consequence, the health intervention needed in any given circumstance is a function of factors such as the level of prevailing resources, the availability and effectiveness of health interventions, and the perspective and values of those making the assessment. Over time notions of health need have come to be defined as a result of momentum in economic discourse and debates and the development and proliferation of common currency quality of life measures that reflect the outcome and efficiency of interventions to improve health and wellbeing. Health systems and the equity-efficiency trade-off We next examine how economic conditions influence the inter-relationship between equity, efficiency and cost describing debates about resource allocation in Beveridge and Bismarckian health systems. These systems take their names respectively from William Beveridge whose report was used as the basis for the policies which helped establish the Welfare State in Britain in the 1940s (Ross, 1952) and Prince Otto Von Bismarck who set up the first schemes of national insurance in Germany in the 1880s (Taylor, 1955; Thomson, 1957). We outline the ways theories of justice underpin equity-efficiency trade-offs, explaining the background to the emergence of new policy concepts and techniques of assessing, measuring, evaluating and prioritising efficient and equitable allocation of resources. The nature of the determinants of health and the role of physical and social environment in the improvement of community health outcomes are considered with respect to equity, need and efficiency. Healthcare is financed and provided free at the point of use by government through taxation in Beveridge-type health systems. Beveridge health systems differ from Bismarck-type systems in which healthcare is financed by multiple employer-based insurance schemes and taxation in which providers are privately Page 15 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 16 rather than publicly owned. Both types of system however face the same problem of increasing demand in the face of finite resources to fund the systems. In recent decades, some reformers of health systems and health policies have attempted to create market incentives within the system to control overall healthcare expenditure, increase quality, bring down prices and increase choice (Bevan, Helderman et al 2010) - for example, providing a choice of provider for healthcare treatments and services as a way of taking some people off waiting lists. However, the economic and social trade-off is that this comes at a price - leaving those who cannot afford to move to languish on the longer waiting list. Alternatively, other systems that prioritise access and give universal coverage to meet health need provide a narrower range of healthcare services because price signals to reallocate resources within the system are absent. An equity-efficiency trade-off occurs and this can create a dash from central decision making to localism where the allocation of resources is determined by local decision makers. Much of the tension in the balance between efficiency and equity however, can be traced to expectations and changes over time in the common understanding of what constitutes good health and wellbeing in communities and countries. Inevitably, these understandings are related to stage of economic development, economic performance and historical Gross National Product (GNP). Some political and philosophical considerations. At the heart of the approaches to needs assessment outlined so far is a relatively one dimensional idea of need. There is an altogether different approach in the philosophical literature which defines need as a dynamic, politically and ideologically value-laden idea. In the political and philosophical view, one focus is unmet health needs in the form of morbidity in individuals and populations. It is argued that unmet need creates unfair deficits in the distribution of health and wellbeing among communities and populations - deficits that society should take steps to address. In this view, need is described as something that is likely to be Page 16 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 17 dynamic over time as technologies, expectations and availability of services change. Measurement of need will therefore vary in different contexts, such as, in the clinical setting and at the population level. Needs assessment planning would therefore involve considerations of allocative efficiency along with social values (McIntyre, Mooney et al 2009). Unfortunately, morbidity turns out not to be a good guide to unmet need! We may posit that one person’s need is greater than another’s because there is a greater degree of morbidity – they are sicker. This in turn implies that one health state is more deserving than another because of the extent of the disease. It also assumes we can accurately measure the differences in disease states. This however may be a false premise because degrees of illness in a strictly biological or pathological sense, even if they can be measured accurately and meaningfully compared, tell us nothing about an individual’s quality of life with different degrees of morbidity and therefore their needs in a social or psychological sense. Some people cope extremely well with illness and have a relatively good quality of life while others seem to be rendered incapable of normal social functioning with relatively minor ailments. The subjective experience of illness and an individual’s response to it significantly affects their expression of need. It is difficult to measure need solely by assessing biological morbidity in any absolute sense (Anderson and Bury 1988). There is a still more difficult issue relating to health differences in populations. All health systems, and by definition all health needs assessment, have to confront the systematic differences in the pattern of heath in populations. The health of individuals varies, and the health of groups of individuals also varies; so men and women, age groups and ethnic groups show average differences in life expectancy and patterns of disease. The health of one country varies compared to other countries; within countries there are differences between individuals and groups. These variations occur because of biological inheritance, because of differential exposure to factors which cause disease and because health services Page 17 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 18 are not uniformly or equally spread between individuals and populations. In any case, individuals make widely different use of available services especially preventive ones. Some people die relatively young, while others live to a ripe old age. Some people live life with multiple health problems and disabilities, others lead lives of a good quality and die peacefully in their beds in their nineties. So as a starting point the demands placed on health systems of these different individuals and groups vary. If we are trying in some way to meet the health needs or demands of various individuals and populations on what basis should we do it? The straightforward answer at the heart of most approaches to health needs assessment is that we should seek to measure the needs of individuals or populations and we should allocate provision to meet the need accordingly, as that would be the fairest way to do it. But that in turn raises several questions – how exactly would we measure need? Could we do so in a way that was accurate and precise and more importantly could we do it in a way that was fair? And fair exactly to whom? To the people in need or to the people who are not in need and whom we might call upon to fund the needs of others in greater need than them. But why should those not in need, subsidize those who are in need? Is that fair? The answer as to whether one thinks it is fair will be dictated by a political preference as well as general ideas about fairness which would in turn be influenced by other ideas about ethics, morality, duty, responsibility and liberty for example. Is it fair to have one’s income taken away to fund the needs of others? Not forgetting that some people’s health needs are in part generated by the choices that they themselves have made in how they have lived their lives, whether they have chosen to smoke, to excessively consume alcohol and food and to take drugs or engage in sexual practices which might expose them to risk of infection. These people have health needs, but whose responsibility is it to meet those needs? Again the answer will be influenced by other value positions. It must also be acknowledged that in response to the international financial crisis of 2008 austerity policies have been pursued in many countries. Consequently, Page 18 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 19 the recent economic environmental context is less likely to trigger positive change in population health impact and value through strategic needs assessment. In response to austerity in England, Local Authorities have developed Sustainability and Transformation Plans (STPs) alongside Joint Strategic Needs Assessment. These aim to move resources from acute care to prevention by targeting those most in need. Patterning of health differences There is another very important dimension at play here which, we have not so far explored in detail; this is the patterning of health differences. This removes the discussion from the level of the individual to the level of the social or population. The differences in health experience and health outcomes, the differences in access to services, the differences in exposures to risk and the differences in activities which are health damaging are not distributed randomly or evenly in the population. Health experience and health outcomes are strongly patterned by social position. On whatever measure used to assess health be it mortality, morbidity or self-defined health, the measures follow a social gradient. Those who are better off on average enjoy better health, live longer and make more use of available services. This applies under whatever arrangements for the funding of services operate. It holds true in market systems like the United States, it holds true in social insurance systems as found in much of Western Europe and it holds true in societies where care is free at the point of use like the United Kingdom. This is called the health gradient - and is one of the most enduring and vexatious characteristics of contemporary health systems (Graham and Kelly, 2004). Comparative data for the UK and the USA illustrate the gradient. They show similar patterns of graded health differences measured by income for, among other things, self-assessed health, diabetes, heart disease, and lung disease (Banks, Marmot et al 2006). The gradient is described in many texts, reports and papers (Bleich, Jarlenski et al 2012). The shape of the gradient varies; it tends to Page 19 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 20 be steeper in societies with very heterogeneous populations and rather gentler in societies which are more socially homogeneous; but only by degree. Health differences linked to social position remain an enduring and structural feature of contemporary developed societies. In both developing and low income countries the same features of health inequities apply though the shape of the gradient tends to be more curvilinear. In some developing and low income countries a small affluent elite enjoy good health outcomes and the majority of the population are in a less desirable situation (Bonnefoy, Morgan et al 2007). In broad terms the state of the contemporary world is one where health differences, however measured, prevail across all societies and also between societies. There are absolute health differences between rich and poor societies and between rich and poor people and those not so poor, in all societies (Kelly and Doohan, 2012). So here we encounter a major problem with the apparently rational calculus of health needs assessment. Whether health need is expressed in terms of health status or outcome, n ed (including subjective expression of need) varies systematically across the population and there are considerable health inequalities. It can be, and often is argued that the needs of the most or the relatively disadvantaged are paramount and therefore resources should be deployed in such a way that they meet those needs first. All that would remain to be done would be to find a technical solution to the measurement of need. In addition to the health gradient there are two other ways of looking at health differences called health disadvantage and health gaps (Graham and Kelly 2004). Health disadvantage simply focuses on differences, acknowledging that there are differences between individuals, distinct segments of the population, or between societies. It is a descriptive and non-judgmental approach. The health gaps approach, in contrast, focuses on the differences between the worst off and everybody else, often inviting the conclusion that those who are not the worst off enjoy uniformly good health. The gap approach also invites the conclusion that this state of affairs is wrong or unfair. Page 20 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 21 A gap approach and a gradient approach lead to rather different solutions. Conceptually, narrowing health gaps look to actions which will improve the health of the poorest regardless of the rest of society. Such an approach would be one which achieved both an absolute and a relative improvement in the health of the poorest groups. The health gradient approach takes, as its starting point in contrast, the acknowledgement that the penalties of inequities in health affect the whole social hierarchy even though they increase from the top to the bottom. Gaps and gradient approaches lead to quite different assessment of need and how to meet those needs. It may seem counter intuitive, but if policies or actions only attempt to target the needs of people at the bottom of the social hierarchy, there will be little or no impact on health inequalities across the rest of society (Rose, 1984; 1992). This is because inequities in health will still exist, the social determinants continue to exert their malign influence and the health needs of the majority of the population remain unatt nded to. The alternative approach advocated by the Marmot reviews for example and WHO (Bonnefoy, Morgan et al 2007) involves a consideration of the whole gradient in health inequities rather than only focusing on the health of the most disadvantaged. An effective policy in this regard is one that meets two criteria. It is associated with (a) improvements in health (or a positive change in its underlying determinants) for all socioeconomic groups up to the highest, and (b) a rate of improvement which increases at each step down the socioeconomic ladder. In other words, a differential rate of improvement is required: greatest for the poorest groups, with the rate of gain progressively decreasing for higher socioeconomic groups. It locates the causes of health inequity, not in the disadvantaged circumstances and health-damaging behaviours of the poorest groups, but in the systematic differences in life chances, living standards and lifestyles associated with people’s unequal positions in the socioeconomic hierarchy (Graham, 2004a,2004b; 2006). The significant caveat is that where the health gap is both large and the population numbers in the extreme circumstances are high, a Page 21 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 22 process of prioritizing action by beginning with the most disadvantaged would be the immediate concern. From health inequality to health equity The gradient leads to some other questions. Does it matter that there are patterns of inequalities in health? Why should we seek to remedy this state of affairs? Why use the instruments of health service provision to deal with this problem? Why conduct needs assessment to try to change the gradient? After all, all societies demonstrate a gradient to some extent. Even though health differences are clear, a case may be made that over the last century and a half, things have improved for nearly everyone - at least in the developed West. Rates of infant mortality are at an historic low and life expectancy has never been greater. Furthermore, while average patterns of morbidity and mortality in different social groups and populations may be clear, there are wide variations between individuals. In short, not all well to do people live to a healthy ripe old age, and not everyone who is disadvantaged dies young. To be human is to know that we will eventually die and that the manner and timing of our death is in almost all circumstances beyond our control whether we are rich or poor. So is it the case that patterned average differences in early and largely preventable death and suffering are unfair and unjust just because they are theoretically preventable – particularly when there is no necessary inevitability that relatively disadvantaged people should die earlier than anyone else? There is no straightforward answer. A number of writers have explored the theme of injustice in this context. The World Health Organisation (WHO) has had a long-standing interest in the matter. The World Health Organisation’s Commission on the Social Determinants of Health used a series of definitions to clarify things which were based on the work of Whitehead (Whitehead, 1992; Whitehead and Dahlgren 2006) and Solar and Irwin (Solar and 2010). A distinction is made between health inequality and health inequity. Health inequality is defined as health differences which are not avoidable or preventable, are not the consequence of human actions and Page 22 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 23 activities, but are based on genetic or constitutional individual differences, age or biological sex. These are sometimes also referred to as variations (Kelly, Morgan et al 2007). Health inequity, in contrast, is defined as unfair and avoidable or remediable differences. Health equity in turn is defined as the absence of unfair and avoidable or remediable differences in health among social groups (Solar and Irwin, 2010). The italics highlight the difference in definitions. It is particularly important to note that the difference in definition between inequity and inequality is not used universally and many writers and commentators employ the two terms as synonyms. Also the distinctions between individual differences which are based on human biology and differences arising from interaction between an organism and an external man-made hazard are in reality difficult to draw in anything other than an analytic sense. Empirically the divides are much fuzzier than these definitions suggest. However, as a way of beginning to find some clarity the distinction is helpful. Equity and inequity are not products of nature they are the products of human actions and, as they are socially, economically and/or politically produced they are, th oretically at least, modifiable. The defining characteristics of equity are fairness and justice; the defining characteristics of inequity are unfairness and injustice (Whitehead and Dahlgren, 2006) Fairness and unfairness can be conceptualised as absolutes; something or some state of affairs is either fair or unfair – it cannot be both at the same time. But thinking like this in absolute terms misses the point that fairness and unfairness are not properties, things or states of affairs, but are about relationships between people. Fairness and unfairness arise as a consequence of the nature of the relationships between people and the ebb and flow of human affairs. So too justice is not a simple measure of equitable distribution of resources according to need, but is about the nature of relationships in society. Justice may be understood in terms of the properties of people, their conduct, the rules that govern their affairs and the characteristics of institutions - an absolute Page 23 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 24 definition The alternative is a relational concept of justice which concerns itself with the ‘justness’ of relations between people - X is unjust to Y (Pogge. 2010). Such relations involve human agency, purpose and motive. From a relational point of view justice should not be about fair distribution; it should be about seeking to identify the agents responsible for the social arrangements that determine the shape of human relationships (Pogge, 2010). Health equity may be conceptualised in distributional or relational terms in the same way that justice can be. The distributional approach is focussed on the goal of equalising good health across society – which is really the underlying value position of most health needs assessment and much of the discourse about health inequity. The relational view is about the balance between the harms inflicted and harms mitigated or prevented. In the relational view social institutions and those responsible for them should have more concern to prevent and mitigate those things they cause themselves and for which they are responsible, rather than those things which are outside of their control (Pogge. 2010). So the real issue in relational terms, with which equity should be concerned, is not the fact that health is differentially distributed, but that social systems contribute to the differential distribution of health and disease. Poverty is the greatest contributor of all to ill health. Organisi g economic arrangements so that they do not generate the conditions of poverty which generate ill health is thus, it may be argued, a moral duty. Therefore, focussing on assessing need without looking at the wider determinants of the causes of inequity in the first place, is misguided. The global economic order is responsible for the generation of ill health and health inequities (Pogge, 2010), and the social arrangements that have negative effects on health are unjust (Venkatapuram, 2011). In a celebrated paper called ‘What is the point of equality?’ Anderson outlined a number of the problems associated with the distributional concept of equality. She warns against the notion that we can construct institutions to make them more equal and fair, not least because this tends towards greater and greater Page 24 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 25 state interference in the lives of the citizenry. She notes that one of the dangers associated with egalitarianism and the distributional approach is that it pushes the limits of the state further into the lives of ordinary people. This is a particular danger if states become concerned with equities of health rather than oppressions of the powerful against the powerless. In other words, focusing on rearranging health care resources to make the patterning of health more equitable is rather like moving deck chairs around on the deck of the Titanic after she hit the iceberg - largely irrelevant and pointless when the ship is sinking. “Recent egalitarian writing has become dominated by the view that the fundamental aim of equality is to compensate people for undeserved bad luck – being born with poor native endowments, bad parents and disagreeable personalities, [and] suffering from accidents and illnesses” (Anderson, 1999). This she says is not really the issue. We should instead be preoccupied with ending oppressive social relations rather than trying to ensure that everyone gets what they morally deserve. It is about creating a community in which people have equality in relationships with one another (Anderson, 1999) – a community built on cooperation between members who see themselves as equals. She argues for democratic equality which means that all law abiding citizens are allowed effective access to the social conditions of their freedom. Anderson criticizes the view that the purpose of distributive justice is to compensate people for their misfortune. Her argument strikes at the heart of the idea that health inequities are simply unfair; her position is that while life may be unfair, bad luck is not at the heart of it – it is the relations between people and the way that they treat each other that is much more fundamental. Anderson draws our attention to the fact that concept of equality can mean a number of different things depending on the underlying political value position and the epistemological assumptions of the theory. So a utilitarian seeking to maximise the greatest happiness of the greatest number would see things differently to a Marxist seeking absolute parity in access to wealth for example. She demonstrates that equality is a rationalist rather than an empiricist concept, Page 25 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 26 meaning that the discourse about distributional equality and heath equity is premised on the manipulation of ideas and the contest between different ideas and political philosophies, rather than being something that can be demonstrated by empirical methods (Millican, 2007). True, protagonists will appeal to empirical evidence about poverty and about wealth to justify their arguments, but in the end, much of the discussion about equality is grounded in ideal discussions of future desired states and institutions and the manipulation of ideas to justify that view, rather than the case being made that empirically things could be changed by doing x, y or z. Where x, y or z are suggested, they are selected on the basis of ideological preference, not empirical science. Bernard Williams argued that the proper grounds for the distribution of health care are health need (Williams, 1962). This he saw as a fundamental truth (Wolff, 2007). Others have argued that this is not a fundamental truth at all. Nozick has suggested that the focus on need, common among egalitarian thinkers, is to define people quintessentially as consumers. The task then becomes one of finding the best way to ensure the fair distribution of available goods to consumers (Nozick, 1974). The problem of course with this approach, is that this casts humanity into a fundamentally passive role and it doesn’t consider individuals as active producers (Wolff, 2007). Williams also argued that there is nothing about need itself intrinsically that should motivate action on equity (Williams, 1962). What society decides to do for people, particularly in health need, depends upon a moral and ethical stance. Another argument is that the goal of fair distribution should be treating the worst off as well as possible rather than flat equity (Wolff, 2007). John Rawls argued that difference in the distribution of primary goods such as health is tolerable, so long as the welfare of the most disadvantaged is looked after (Rawls, 1971) . Dworkin takes this argument a stage further. He suggests that we need to determine why the worst off are in that position. Dworkin asserts that some may not be able to work because they are unable to find work; but others may decide Page 26 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 27 they do not want to work. Dworkin also notes that some people’s needs are greater than others (someone who is severely disabled has greater need than someone who is able bodied for example – although as we noted above this is a highly questionable first premise). But needs, Dworkin notes, are compounded by taste. Some people’s needs are determined by expensive tastes say for drugs or wine or jewellery. Dworkin therefore distinguishes between brute bad luck and circumstance from optional bad luck involving some degree of culpability for being in need. For Dworkin, this distinction is all important, as it is his view that the state has a duty to deal with the former, but not the latter (Dworkin, 2000). Some further philosophical reflections Health needs assessment is not value neutral it is premised on a number of philosophical and political concepts. It is helpful to explore the arguments relating to these ideas not least because although they are fundamental to health needs assessment the conventional literature about health needs assessment seldom considers the underlying assumptions and issues in detail. This is particularly so with respect to the central importance of utilitarianism and its contested place in the philosophical canon. The discussion is made all the more confusing because many of the relevant ideas like justice, equality, fairness and so on are in common as well as technical philosophical usage and the meanings attached to common sense understanding of the words and the technical vocabulary usage are seldom commensurate. Another very intriguing characteristic of the literature – a literature after all which readily uses terms like justice, fairness, equality, is that with the exception of Sen (2009), (more of whom below) the origins of the arguments about justice and need are conducted almost entirely without reference to their antecedents in Christian or the teachings of the other major world religions. The secular attempts to define the equal society, justice and fairness struggle in this regard, to find a moral or ethical point of reference. The other very odd thing is that conventional political philosophy has, down the years, actually paid scant Page 27 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 28 attention to health and health inequalities and issues of distribution of health care resources (Venkatapuram, 2011). At the heart of the debates about equity and health inequity in contemporary society is, as we saw above, social justice. Health inequities are considered by many commentators to be unjust and unfair and this is advanced as a reason for allocating resources following needs assessment, more fairly. Just as utilitarianism is central to health needs assessment, it has also been central to theories of justice too viz. what produced the greatest happiness in the greatest number was considered to be socially just (Venkatapuram and Marmot, 2009). This absolute or distributional approach to justice was based on a highly individualistic model and was premised in turn on the individual as the unit of analysis and not the alternative which is the relational conception of social life. The solution in the utilitarian view of the world is fair distribution and systems which can efficiently distribute resources, a principle at the very heart of health needs assessment. The utilitarian argument overlooks, by virtue of its basis in the maximisation of utility, not only the fact that humans are motivated by a variety of things, not just maximising utility, like love, social conflict, human venality, and sheer and utter evil, but also it doesn’t seem have a concept of the social (Etzioni, 1988). In other words, individual utility maximising motivated agents are the focus of the argument, not social relations between people. This individualistic approach chimes with medicine. Medicine has as its principal focus, pathology in the individual human body. This means that, with only a few historical exceptions, the intellectual interests have been oriented to phenomena located in individual human bodies or minds with pathology measurable in ways that reflect the individual and individual variation from some notion of what is normal or healthy (Antonovsky, 1985;1987; Carter, 2003). This approach received an enormous boost with the rise of germ theory and with the fantastic successes of the isolation of pathogenic microbes and then antibiotics to combat them (Kelly & Russo, 2018). Of course medicine has other Page 28 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 29 foci too; especially body systems, but the variables and phenomena of particular interests are individual. The pathogenic paradigm, in which the fundamental rationale is isolating the specific cause (pathogens) of specific outcomes (pathologies), reinforces the individualistic approach (Antonovsky, 1987). Psychology has likewise made its main focus the individual so measures of intelligence, personality, quality of life, all reside in the individual or are characteristics or properties of individuals. The approach is about the degree to which things go wrong in individual bodies and minds and the preceding causes of the pathology. Need as an individual property is an obvious next step in this way of thinking. Economics and especially health economics has bought into this individualistic paradigm in a big way. The QALY and the application of cost utility analysis and health technology assessment are deeply infused with an individualistic orientation. The greatest happiness of the greatest number is the utilitarian philosophical view which sits very comfortably with the individualistic paradigm because it conceptualises the notion of the good as the aggregate of lots of different individual utilities. The ontological consequence of this – i.e. the assumptions made about what constitutes human life and how and why it is the way that it is – is the idea that the essence and meaning of human existence can be captured by isolating these individual characteristics and seeing how they connect to each other. So individual characteristics as different as height, weight, blood pressure, bone density, hair colour, IQ, biological sex and size of tumour for example can each in turn be linked to the presence of other characteristics in the individual like health of mother, poor nutritional status in childhood, genetic coding, parental heredity, age, chromosome structure and exposure to tobacco smoke. The causal link is from one individual characteristic to another. Now all of this is intuitively meaningful – in the modern Western world the individual and the individuated self are touchstones of the way we live our lives and the way the state regulates our lives - we have for example individual Page 29 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 30 national insurance numbers, passport numbers, birth certificates, tax codes and genomic structures. Individual variables seem natural. Further in medical terms there have been some remarkable successes in isolating disease mechanisms and offering curative technologies using the individual approach– although far less than the popular imagination often supposes - using these principles. However, there are two fundamental objections which suggest that an additional way of viewing things might be helpful. First the individualist approaches dehumanise people – people are reduced to some sub-human characteristic – a number, a genetic code, a pathological organism, a utility. But second, and more importantly, and notwithstanding the advances that have followed in the wake of some of the individualistic connections which have been made, above all it ignores or relegates the fact that humans live in groups and that those groups are in relations with each other and that membership of those groups is a defining characteristic of identity and of profound importance to most people – one’s family, class, tribe, caste, gender, ethnicity, nationality are all paramount social markers in life. Moreover, the relationships within which we live our lives, the relations with other people, the relationships within and between different groups, shapes the nature of our human selves, our experiences and our behaviour (Kriznik et al 2018). The defining characteristic of human life is belonging - to be a member of multiple groups and communities. We live our lives in a network of interlinked and overlapping relations with others. Knowingly or not, the desire to belong has far reaching consequences on the types of behaviours that we adopt and the choices that we make. Not surprisingly therefore, the effects of social exclusion or isolation from social groups are of paramount importance when trying to explain the health of an individual. What this makes us pause and reflect on is not that the individual understanding of human affairs is unimportant – that would clearly be an absurd position to adopt. Rather it is that a full understanding of the human condition requires additionally another set of concepts – which capture human relationships – relational concepts – in order to develop a rounded account of human life (Kriznik Page 30 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 31 et al 2018). And moreover inequity and injustice are best understood in relational not individualistic terms. Social theorists have grasped the idea of a well-rounded approach very neatly in the conception of the dynamic interaction between agency and structure. The idea of agency is that we are all unique biological, psychological and physical individuals. We all engage in individually motivated actions and behaviours which are in part the results of our unique individuality. But the sum of all human behaviours is the social structure which is the product of the millions and billions of human relationships that are the medium for individual actions. Those structures or webs of human relationships are relational and in turn they constrain, drive, and facilitate individual human behaviour. So we have individual behaviour, the medium for its expression which are human relationships, and social structures which are the sum of all those relationships which in turn impinge on and delimit the possibilities of individual behaviour (Giddens, 1979;1984; Elder Vass, 2010) This rather abstract approach allows us in turn to consider some of the thorny problems at the heart of health needs assessment. Thinking of the dynamic interaction between agency and structure moves us beyond the methodological individualism of traditional epidemiology and therefore of health needs assessment and provides an escape from the individual level of explanation (Frohlich, Corin et al 2001). This in turn allows for a fuller understanding of the dynamics of the development of health inequalities. (Abel and Frohlich, 2012), This way of thinking has been linked to what is called capability theory (Sen, 2009). Under austerity policies the notion of capabilities has started to enter into Joint Strategic Needs Assessment, Health in All Policies (see section above on some political and philosophical reflections above). The core characteristic of capability theory is its focus on what people are effectively able to do within relationships with each other (Abel and Frohlich, 2012). Individuals being able to engage effectively in what they really want to do, is the core idea. These engagements include being active, healthy, and being able to work but the list is Page 31 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 32 not limited to these activities. In the capability approach, resources and their fair distribution to individuals (the focus of the traditional utilitarian approach) are not the central interest. Resources are not ends in themselves they are means to ends. And neither are resources reducible to monetary utilities. People’s abilities to realize their life goals and plans are the focal point. In the capability approach, the issue of justice, fairness and need does not apply to resources per se but to the range of options for agency – the capabilities (Abel and Frohlich, 2012). Sen is a key thinker in relation to these arguments. He makes the case for a dynamic approach to social justice. He has argued that to think about justice like this is a major shift away from the traditional ways that philosophers have thought about justice. This is because they were locked into the utilitarian/ distributional tradition (Sen, 2009). This is important in the context of needs assessment which is fundamentally utilitarian and implies that through its rationality and market allocative efficiency it will be possible to deliver fairness by market redistribution. This follows a tradition which goes back, according to Sen, to the Enlightenment. The utilitarian position is a rationalist position writ large, i.e. a position which is about the manipulation of ideas, rather than the observation of empirical facts (Millican, 2007). The ideas about social justice which are being manipulated are that it is possible to design institutional arrangements that will deliver justice and this will be the basis of a perfect society. For Sen, justice is a relative concept and is about relations between people. Justice is a process, an aspiration; it is about advancing justice or reducing injustice. It is not about finding or describing the perfectly just society. Because social structures and their properties emerge out of human relationships, it means that to try to legislate to change social systems to make them more just or fair can only ever be partially effective. In a sociological sense justice and injustice are properties of social systems not abstract transcendental things that can be made by social actors. Sen’s approach is comparative, plural, iterative, dynamic, and acknowledging of alternatives. Page 32 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 33 Justice in this view is not a given – a rationally derived static universal principle. It is about relations between people and arises as a consequence of social action and social structure. Therefore, injustice will also arise socially in social interaction and is decided upon morally or metaphysically. The judgement about whether the relations between people, such as differences in health, are just or unjust is a value judgement. In short, seeking to bring about equality in relation to health by the utilitarian redistribution of resources is never likely to work, or to produce fairness and justice because justice is not a quality of individuals or institutions. Equality is about human relationships and the utilitarian approach at the heart of health needs assessment is based on an alternative individualistic ontology. Sen’s argument is that theories of justice major on something; it could be happiness as in the case of classical utilitarianism, and it could be resources or income. Sen argues that in contrast to these utility-based or resource-based lines of thinking, individual advantage is judged in the capability approach by a person’s capability to do things they have a reason to value. A person’s advantage in terms of opportunities is judged to be lower than that of another if they have less capability – less real opportunity – to achieve those things that they have reason to value. The focus is on the freedom that a person actually has to do this or be that – things that they value doing or being (Sen, 2009). Sen’s approach is about human life and the opportunities for living - living as against just existing. Justice for Sen cannot be created by social institutions. Justice should aim to reduce injustice, i.e. change the nature of the relationships between people, rather than aiming to produce a perfectly just society. Conclusion. Health needs assessment can be seen as a highly rational and straightforward means of identifying health needs, of linking needs to patterns of health inequities, of marshalling appropriate resources to match those needs and then deploying resources accordingly. And of course that is what it aspires to do. But Page 33 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 34 that aspiration is based on the traditional rationalist approach of utilitarianism and in turn on an individualist ontology. Need, as we have shown, is not a static, objective thing. It is therefore intrinsically difficult to measure and as soon as one starts to try to capture the idea fundamental questions about fairness and justice are raised. The objective and measurable concept of need is located in an individualist ontology. When we think instead in relational terms about equity, justice and human capabilities a different perspective is possible. Capabilities theory captures the idea of equity in a far more nuanced way than individualistic utilitarian accounts. It also offers a more complete way of understanding how we might rethink health needs assessment. So rather than seeking to measure individualistic objective variables and then seeking to apply resources accordingly, the relational capabilities approach bids us to think about the relations between service providers and users in a novel way. It requires us to not to try to match resources to a completely slippery and spuriously objective concept of need, but instead makes us consider the nature of the relationships between people and services. Maximising health outcomes, a utilitarian fundamental principle, may not be what social justice requires and alleviating injustice may require more than maximising efficiency (Venkatapuram, 2011). The argument then hinges on several fundamental things: the degree to which the structure and organisation of services permits people to meet their own capabilities, the degree to which it allows human potentials to be realised, the degree to which the relationships with services do not distort or alienate people from themselves or from others. The capability approach privileges human functioning, not maximising utility or achieving an idealised and biologically improbable disease free state (Venkatapuram, 2011). This means that service design should reflect and respect human dignity; this means respect for an individual person, but at the same time acknowledging the Page 34 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 35 limitations which disease and disability genuinely impose on people while recognising that there is not a direct cause and effect linear relationship between disease state and social functioning. It should acknowledge the fact that illness and disease by their very nature tend to exacerbate disconnectedness between the person and their normal role responsibilities, their primary social attachments and their desired capabilities. The experience of disease and disability can also produce a profound separation of the individual from their sense of self or their sense of who and what they want to be. The capability approach therefore requires us to respect the lifeworlds of ordinary people and work with them to build their skills, assets and capabilities (rather than focussing on their deficits and trying to correct them via resource redistribution). These skills, assets and capabilities allow them to manage their lifeworlds with minimal interference. The kinds of skills which enhance capabilities include interpersonal relationships, technical skills to manage the routine aspects of social and economic and domestic life, skills to develop emotional and psychological resistance (often referred to as coping or resilience mechanisms) and an ability to make life seem meaningful. These skills enable people to manage the routine travails of ordinary living as well as the more significant life events which engulf everybody from time to time (Kelly, 2010b). It also allows people to manage the material lifeworld they inhabit. This is important because the material and psychological lifeworlds mediate the stressors - physical, psychological and biological - which assault the human body periodically. The greater the ability people have to control their life- worlds, the greater the resilience they will have. Skills to control the life-world are quintessentially capabilities. The inability to exert that control forms the basis of the patterning of health inequities because the ability to exert control is not spread uniformly through the population. Following Sen’s prescription, we should seek not to measure need in a potentially spuriously scientific way, but rather acknowledge that the total population, all of us, are in need of strengthening our capabilities. Further it is relatively easy to predict where the need to develop more capabilities and skills is greatest and that is among the poor, the disadvantaged, sub-groups and minorities, and people with disabilities. Efforts to Page 35 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 36 develop and build the skills and capabilities should be proportionately, but not exclusively, focussed on these groups. The level of self-empowerment to help to realise these capabilities needs to be appropriate for the individual. This is an important consideration when deciding where to deploy resources. When this happens, it almost always involves active public participation to determine what it is that people value. Moreover, upstream efforts need embrace a public health preventive approach; an education in basic skills for living, appropriate role modelling as the basis of skills for human interaction, proper deportment, manners, respect for others, management of emoti ns and the development of a balanced sense of self and identity – are the basics of human socialization. This means that the early years are particularly important and that taking the edge off encounters between people that are destructive and harmful is paramount. While all of this plays out on life’s grand stage, it must also apply to the way health services are provided and delivered. If services are organised around allocative efficiency alone and neglect the sense of self, the identity, the skills required to negotiate the system, and they alienate patients and public from and systematically deskill the recipients of care, they meet no one’s needs at all, and serve only to make the patterns of inequities worse. They become, in other words, a contributor to the problem, rather than a solution to it. Unfortunately, the utilitarian approach with its individualistic ontology, and its emphasis on ideal rationality, is focused on a question, which on the face of it is not unreasonable, of how to match resource deployment to need. This is in fact the wrong question, so it often ends up doing exactly the opposite of what it is trying to do and making matters worse. A purely deficits approach to health needs assessment may well be neat and tidy, however it only tells one side of the story. Widening the approach to encompass assets starts to get complex and messy. Where Sen’s capability theory is involved there is no ready-to-go formula. Instead of avoiding what is hard to do we should embrace the challenge. It is after all, the challenge Page 36 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 37 of understanding what it is to be human. Fortunately, there are many people who have risen to this challenge and remarkable things are happening across the Globe. Whilst helping people in need is a virtue we mustn’t lose sight of the fact that we are all part of the human species and we all live on the same planet. None of us are equal until all of us are equal. We should understand needs assessment in terms of building assets and capabilities rather than focusing on deficits. In the context of the aftermath of the global financial crisis, austerity, the ageing population, rising levels of obesity and costly healthcare systems there are clear implications for the nature of health needs assessment. What is required is greater capacity to harness insight from routine digital data, more acceptance of ideas about creating agency among those most in need and acknowledging the impact of the structural determinants of health on capability. Population approaches, targeting those in greatest need allow the harder edge of human existence to be ameliorated. It does mean though that the temptation to try to find purely rationalist solutions which can only ever work in theory, or indeed in Utopia – nowhere - rather like transcendent theories of justice, must be resisted. It must be acknowledged that it is about human relationships and allowing those relationships to be as humanly meaningful and fulfilling and permitting of enhancing human capabilities as possible. The most important task in a good and just society is to prevent the erosion of those things which protect and maintain human capabilities. It is to protect the virtuous and the virtues and to enhance them where possible and to protect them by supporting social arrangements which facilitate that. Relationships cannot be legislated for, nor made to happen by complex processes of resource allocation. Justice and the social arrangements that maintain relationships are in the end the emergent properties of social relations. Those relations must be cultivated in a humane, and as far as possible, just way that protects and enhances people’s capabilities. This must be the pre-requisite for any state wanting to deploy its health care resources in a way that is both Page 37 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 38 effective and meaningful. Building capability into service design is a fundamental pre-requisite. Page 38 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 39 References. Abel, T., Frohlich, K.L. (2012) Capitals and capabilities: Linking structure and agency to reduce health inequalities, Social Science and Medicine; 74: 236-244. Alfano-Sobsey, E., Ledford, S.L., Decosimo, K., Horney, J.A. (2014) Community health needs assessment in Wake County, North Carolina: partnership of public health, hospitals, academia, and other stakeholders, North Carolina Medical Journal; 75(6):376-83. Allchorne, P., Green, J. (2016) Identifying unmet care needs of patients with prostate cancer to assist with their success in coping, Urologic Nursing; 36(5):224-32. Anderson, E.S. (1999) What is the point of equality? Ethics; 109: 288-337. Anderson, R., Bury, M. (1988) (eds) Living With Chronic Illness: The Experience of Patients and their Families. London: Unwin Hyman. Antonovsky, A. (1985) Health Stress and Coping. San Francisco: Jossey Bass. Antonovsky, A. (1987) Unravelling the Mystery of Health: How People Manage Stress and Stay Well. San Francisco: Jossey Bass. Apatu, E., Hamadi, H., Abrams, J.A., Metzger, I.W., Spaulding, A. (2018) Association between hospital community services and county population health in the USA, Journal of Public Health; https://doi.org/10.1093/pubmed/fdy007 Page 39 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 40 Ash, M., Mackereth, C. (2013) Assessing the mental health and wellbeing of the lesbian, gay, bisexual and transgender population, Community Practitioner; 86(3):24-7. Banks, J., Marmot, M., Oldfield, Z., Smith J.P. (2006) The SES health gradient on both sides of the Atlantic. Cambridge, MA: National Bureau of Economic Research. Barendregt, J. (2006) Economics and public health: an arranged marriage, European Journal of Public Health; 17(2) :124. Becker, K.L. (2015) Conducting Community Health Needs Assessments in rural communities: lessons learned, Health Promotion Practice; 16(1):15-19. Bentham, J. (1834) Deontology or the science of morality. In: Bowring J (ed) The Works of Jeremy Bentham:Two volum s. London: Longman. Bevan, G., Helderman, J., Wilsford, D. (2010) Changing choices in healthcare: implications for equity, efficiency and cost, Health Economics Policy and Law; 5: 251-267. Bleich, S.N., Jarlenski, M.P., Bell, C.N., LaVeist, T.A. (2012) Health inequalities: trends, progress and policy, Annual Review of Public Health; 33: 7-40. Bonnefoy, J., Morgan A., Kelly M.P., Butt J., Bergman V., et al. (2007) Constructing the evidence base on the social determinants of health. Report to the World Health Organization Commission on the Social Determinants of Health. http://www.who.int/social_determinants/knowledge_networks/add_documents/me kn_final_guide_112007.pdf accessed 25th October 2018 Page 40 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 41 Bowling, A. (2001) Measuring Disease. 2nd ed. Buckingham: Open University Press. Carter, K.C. (2003) The Rise of Causal Concepts of Disease: Case Histories. Aldershot: Ashgate. Cicero, A.F., Rosticci, M., D'Addato, S., Baronio, C., Grossi, G., Grandi, E., Borghi, C. (2014) Population health needs assessment and healthcare services use in a 3 years follow-up on administrative and clinical data: results from the Brisighella Heart Study, High Blood Pressure & Cardiovascular Prevention; 21(1):45-51. Clarke, A., Powell, J., Lansang, M.A. (2009) Needs assessment: a practical approach. In: Detels, R., Beaglehole, R., Lansang, M.A., Gulliford, M. (2009) Oxford Textbook of Public Health. Thr e Volumes. 5th ed. Oxford: Oxford University Press; 1549. Cohen, D.R., Henderson, J.B. (1988) Health Prevention and Economics. Oxford: Oxford Medical Publications Cox, C.L., Sherrill-Mittleman, D.A., Riley, B.B., Hudson, M.M., Williams, L.J., Leisenring, W.M. Zacher, M.G., Robison, L.L. (2013) Development of a comprehensive health-related needs assessment for adult survivors of childhood cancer, Journal of Cancer Survivorship; 7(1):1-19. Derby City Public Health – Knowledge, Intelligence and Strategic Planning (2017) Children and Young People’s Mental Health and Emotional Wellbeing Health Needs Assessment, South Derbyshire, North Derbyshire, Erewash, Hardwick Clinical Commissioning Groups, Derbyshire County Council and Derby City Council. Page 41 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 42 Dworkin, R. (2000) Sovereign Virtue. Cambridge MA: Harvard University Press. Elder-Vass, D. (2010) The Causal Power of Social Structures: Emergence, Structure and Agency. Cambridge: Cambridge University Press. Etzioni, A. (1988) The Moral Dimension: Towards a New Economics, New York: Free Press. Fischer, K.R., Schwimmer, H., Purtle, J., Roman, D., Cosgrove, S., Current, J.J., Greene, M.B.(2018) A content analysis of hospitals' Community Health Needs Assessments in the m st violent U.S. cities, Journal of Community Health; 43(2):259-262. Franz, B., Skinner, D., Kelleher, K. (2017) The impact of the Affordable Care Act on hospital-led community health evaluation in the U.S. Appalachian Ohio region, Journal of Evaluation in Clinical Practice; 23(4):882-887 Frohlich, K.L., Corin, H., Potvin, L. (2001) A theoretical proposal for the relationship between context and disease. Sociology of Health & Illness; 23(6):776-797. Giddens, A. (1979) Central Problems in Social Theory: Action, Structure and Contradiction in Social Analysis. Berkeley: University of California Press. Giddens, A. (1984) The Constitution of Society: Outline of the Theory of Structuration. Berkeley: University of California Press. Gillam, S., Yates, J., Badrinath, P. (2012) Essential Public Health: Theory and Practice. Cambridge: Cambridge University Press. Page 42 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 43 Graham, H. (2004a) Social determinants and their unequal distribution: clarifying policy understandings. Milbank Quarterly; 82: 101-24. Graham, H. (2004b) Tackling Health Inequalities in England: remedying health disadvantages, narrowing gaps or reducing health gradients. Journal of Social Policy; 33:115-131. Graham, H. (2006) Socioeconomic inequalities in health: evidence on patterns and determinants. Benefits; 14: 77-90. Graham, H., Kelly M.P. (2004) Health inequalities: concepts, frameworks and policy. London: Health Development Agency. http://scholar.google.co.uk/scholar?cluster=18333615055318155183&hl=en&as_ sdt=0,5 Accessed 25th October 2018 Health Development Agency (2003) The Working Partnership, London: Health Development Agency. Hong, K.J., Song, K.J., Shin, S.D., Song, S.W., Ro, Y.S., Jeong, J., Kim, T.H., Lee, Y.J., Kim, M., Jo, S.N., Kim, M.Y. (2017) Rapid Health Needs Assessment after Typhoons Bolaven and Tembin using the Public Health Assessment for Emergency Response Toolkit in Paju and Jeju, Korea 2012, Journal of Korean Medical Science; 32(8):1367-1373. Horsley, S., Hollingworth, E. (2014) Children and Young People’s Emotional Wellbeing and Mental Health: Health Needs Assessment, Sheffield: Sheffield City Council. Ingold, K., Hicks, F. (2015) Using a public health approach to improve end-of-life care: results and discussion of a health needs assessment undertaken in a large city in northern England. BMJ supportive & palliative care. 5(2):200-2. Page 43 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 44 Kelly, M.P. (2010a) The axes of social differentiation and the evidence base on health equity. Journal of the Royal Society of Medicine; 103: 266-72. Kelly, M.P. (2010b) A theoretical model of assets: the link between biology and the social structure. In Morgan A., Ziglio E. (eds) International Health and Development: Investing in the Assets of Individuals, Communities and Organisations. New York: Springer. Kelly, M.P., McDaid D., Ludbrook A., Powell J. (2005) Economic appraisal of public health interventions. Health Development Agency. http://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.476.3820&rep=rep1&ty pe=pdf accessed 25th October 2018 Kelly, M.P., Morgan, A., Ellis, S., Younger, T., Huntley, J., Swann, C. (2010) Evidence based public health: A review of the experience of the National Institute of Health and Clinical Excellence (NICE) of developing public health guidance in England. Social Science and Medicine; 71:1056 – 1062. http://dx.doi.org/10.1016/j.socscimed.2010.06.032 Kelly, M.P., Morgan, A., Bonnefoy, J., Butt, J., Bergman, V., et al. (2007) The social determinants of health: Developing an evidence base for political action. Final Report to the World Health Organization Commission on the Social Determinants of Health, http://www.who.int/social_determinants/resources/mekn_report_10oct07.pdf accessed 25th October 2018 Kelly, M.P., Moore, T.A. (2012) The judgement process in Evidence Based Medicine and Health Technology Assessment. Social Theory and Health; 10:1- 19. http://www.palgrave-journals.com/sth/journal/v10/n1/full/sth201121a.html Page 44 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 45 Kelly, M.P., Doohan, E. (2012) The Social Determinants of Health. In Merson, M.H., Black, R.E., Mills, A.J. (eds) Global Health: Diseases, Programs, Systems and Policies. 3rd ed. Burlington, MA: Jones & Bartlett. pp 75-113. Kelly, M.P. Russo, F. (2018) Causal narratives in public health: the difference between mechanisms of aetiology and mechanisms of prevention in non- communicable diseases. Sociology of Health and Illness. 40 (1): 82–99. http://onlinelibrary.wiley.com/doi/10.1111/1467-9566.12621/pdf Kickbusch, I., Williams, C., Lawless, A. (2014) Making the most of open windows: establishing Health in All Policies in South Australia. International Journal of Health Services; 44, 185–194. Kriznik, N.M., Kinmonth, A.L., Ling, T., Kelly, M.P. (2018) Moving beyond individual choice in policies to reduce health inequalities: the integration of dynamic with individual explanations, Journal of Public Health; https://academic.oup.com/jpubhealth/advance- article/doi/10.1093/pubmed/fdy045/4931230?guestAccessKey=af9f5249-b3b7- 4270-92db-421e9c8fb5ac Leininger, L.J., Friedsam, D., Voskuil, K., DeLeire, T. (2014) Predicting high-need cases among new Medicaid enrolees, American Journal of Managed Care; 20(9):e399-407. Lorgelly, P., Lawson, K., Fenwick, E., Briggs A. (2010) Outcome measures in economic evaluations of public health interventions: a role for the capacity approach? International Journal of Environmental Research and Public Health; 7(5) :2274-2289. Page 45 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 46 McGuire, A., Henderson, J., Mooney, G. (1988) The Economics of Healthcare. London: Routledge. McIntyre, D., Mooney, G., Jan, S. (2009) What is need and how do we measure it? In Detels, R., Beaglehole, R., Lansang, M.A., Gulliford, M. Oxford Textbook of Public Health. Three Volumes. 5th ed. Oxford: Oxford University Press :1535- 1548. Malilay, J., Heumann, M., Perrotta, D., Wolkin, A.F., Schnall, A.H., Podgornik, M.N., Cruz, M.A., Horney, J.A., Zane, D., Roisman, R., Greenspan, J.R., Thoroughman, D., Anderson, H.A., Wells, E.V., Simms, E.F. (2014) The role of applied epidemiology methods in the disaster management cycle. American Journal of Public Health; 104(11):2092-102 Mathews, A.L., Coyle, B.S., Deegan, M.M. (2015) Building community while complying with the Affordable Care Act in the Lehigh Valley of Pennsylvania, Progress in Community Health Partnerships; 9(1):101-12. Millican, P. (2007) (ed) Introduction to Hume D. An Enquiry Concerning Human Understanding. Oxford: Oxford University Press. Mooney, G.H. (1992) Economics Medicine and Healthcare. 2nd ed. Brighton: Wheatsheaf; NICE (nd) Glossary https://www.nice.org.uk/Glossary?letter=H#Health%20needs%20assessment Accessed 18th October 2018. NHS England (2015) Health and Wellbeing Health Needs Assessment Programme: Immigration Removal Centres and Residential Short Term Holding Facilities, National Summary Report, May 2015. Page 46 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 47 NHS Kent and Medway (2013) Breastfeeding services in West Kent and Dartford Gravesham and Swanley: Health Needs Assessment, Kent and Medway Public Health Observatory. Nacul, L.C., Stewart, A., Alberg, C., Chowdhury, S., Darlison, M.W., Grollman, C., Hall, A., Modell, B., Moorthie, S., Sagoo, G.S., Burton H. (2014) A Toolkit to assess health needs for congenital disorders in low- and middle-income countries: an instrument for public health action. Journal of Public Health. 36(2):243-50. Nozick, R. (1974) Anarchy, State and Utopia. Oxford: Blackwell Pareto, V. (1935) Mind and Society. New York: Harcourt Brace Jovanovich. Pennel, C.L., McLeroy, K.R., Burdine, J.N., Matarrita-Cascante, D. (2015) Nonprofit hospitals' approach to community health needs assessment, American Journal of Public Health. 105(3):e103-13. Pogge, T.W. (2003) Relational conceptions of justice: responsibilities for health outcomes. In Anand S., Fabienne P., Sen A. (eds) Health, Ethics and Equity. Oxford: Clarendon: 1-10. Powell, J. (2006) Health Needs Assessment: A Systematic Approach. National Library for Health: Health Management Specialist Library. www.library.nhs.uk/healthmanagement/ViewResource.aspx?resID=29549 Powell, J. E. (2007) Health economics in public health. In Orme J., Powell J., Taylor P., Grey M. (2007) (eds) Public Health in the 21st century: New Perspectives on Policy Participation and Practice. Maidenhead: Open University Press. Pretty, I.A. (2014) The life course, care pathways and elements of vulnerability: a picture of health needs in a vulnerable population; Gerodontology; 31 Suppl 1:1-8 Page 47 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 48 Public Health England, Local Government Association (2016) Local wellbeing, local growth: Implementing Health in all Policies at local level: Practical Examples. London: Public Health England. Rawls, J. (1971) A Theory of Justice. Cambridge MA: Harvard University Press. Rose, G. (1985) Sick individuals and sick populations. International Journal of Epidemiology; 14:32-38; Rose, G. (1992) The Strategy of Preventive Medicine. Oxford: Oxford University Press. Rosenbaum, S. (2013) Principles to Consider in the Implementation of a Community Health Needs Assessment Process, Department of Health Policy School of Public Health and Health Services, George Washington University, Washington DC. http://nnphi.org/wp- content/uploads/2015/08/PrinciplesToConsiderForTheImplementationOfACHNA Process_GWU_20130604.pdf Accessed 25th October 2018 Ross, J.R. (1952) The National Health Service in Great Britain: An Historical and Descriptive Study. London: Oxford University Press. Sen, A. (2009) The Idea of Justice. London: Allen Lane. Stevens, A., Raftery, J. (1997) (eds) Health Needs Assessment: The Epidemiologically Needs Based Reviews. Oxford: Radcliffe. Stone, K. Sierocki, A., Shah, V. Ylitalo, K.R., Horney, J.A. (2018) Conducting Community Health Needs Assessments in the Local Public Health Department: a comparison of random digit dialing and the Community Assessment for Public Page 48 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 49 Health Emergency Response, Journal of Public Health Management and Practice; 24(2):155-163 Solar, O., Irwin, A. (2010) A conceptual framework for action on the social determinants of health. Social Determinants of Health Discussion Paper 2, Policy and Practice. WHO: Geneva. Subaiya, S. Moussavi, C. Velasquez, A., Stillman, J. (2014) A rapid needs assessment of the Rockaway Peninsula in New York City after Hurricane Sandy and the relationship of socioeconomic status to recovery, American Journal of Public Health; 104(4):632-8. Taylor, A.J.P. (1955) Bismarck: The Man and the Statesman. London: Hamish Hamilton : 202-08. Thomson D. (1957) Europe Since Napoleon. London: Longman : 356-59. Van Gelderen, S.,Krumwiede, K.A., Krumwiede, N.K., Fenske, C. (2018) Trialing the Community-Based Collaborative Action Research Framework: Supporting Rural Health Through a Community Health Needs Assessment, Health Promotion Practice; DOI: 10.1177/1524839917754043 http://journals.sagepub.com/doi/pdf/10.1177/1524839917754043 Venkatapuram, S. (2011) Health Justice: An Argument from the Capabilities Approach. Cambridge: Polity. Venkatapuram S., Marmot, M. (2009) Epidemiology and social justice in the light of social determinants of health research. Bioethics; 23: 79-89. Page 49 of 50 Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 For Review Only 50 Vyas A.N., Chaudhary, N., Ramiah, K., Landry, M. (2013) Addressing a growing community's health needs: project SAHNA (South Asian Health Needs Assessment), Journal of Immigrant & Minority Health; 15(3):577-83. Whitehead, M. (1992) Perspectives in health inequity, International Journal of Health Services; 22: 429-45. Whitehead, M., Dahlgren, G. (2006) Levelling Up. Part 1. A Discussion Paper on Concepts and Principles for Tackling Inequities in Health. Copenhagen: WHO. Williams, B. (1962) The Idea of Equality, Philosophy, Politics and Society. Second Series. In Laslett. P and Runciman, W.G (eds.). Blackwell: 110-131. Wolff, J. (2007) Equality: The Recent History of an Idea, Journal of Moral Philosophy; 4: 126. World Health Organisation. (1947) Constitution of the World Health Organisation. Geneva: World Health Organisation. World Health Organisation. (1948) Official records of the World Health Organisation. Geneva: World Health Organisation. World Health Organisation. (1958) The first ten years: the World Health Organisation. Geneva: World Health Organisation. Page 50 of 50Oxford Textbook of Global Public Health 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60